January 24, 2013

The Plan

I've been meaning to update for quite a while, I just haven't had the time.  And there's quite a bit of new information that I've actually known for a while, so I apologize for the delay!
 
The tumor board of experts got together on Thursday, the 10th, and reviewed Jared's MRI.  They all concluded that it was tumor re-growth, but they also agreed that invasive surgery wasn't the answer...yet.  They decided to do what they call radio-surgery.  It's pretty much gamma knife surgery, but a little different.  We met with the neurosurgeon last Tuesday to go over the details.  It's basically just like a radiation treatment, but much more powerful and precise, with lasers coming from all different angles.  Before they can do the procedure, he will be fitted for a mask to go over his head (just like he did for radiation) and he has to get an MRI and CAT scan.  The actual procedure only takes about 15-20 minutes.  The only side-effect is a possible headache for a day or two, but it's out-patient and really simple.  So it's definitely something we can deal with!
 
The down-sides to this procedure:  It's not as effective as regular surgery, which is a HUGE minus for obvious reasons, and the doctor acted like this is basically just prolonging a more-than-likely future surgery.  So I guess we're just buying time.  My only question or hesitation with the radio-surgery is this:  If the radiation from a year ago causes necrosis or dead tissue in the brain (not good), won't this radiation create even more future problems?  Obviously if it's re-growth, that's the least of their concerns.  And the other question is:  What if this isn't re-growth at all?  I think that question will be answered when he gets his pre-surgery MRI and CAT scan.
 
So we're looking at probably next week for the procedure to take place.  We're still waiting to get pre-approval from the insurance.  It's now been three weeks since the last MRI.  The day before the last MRI he went to a store with his dad and said he REALLY struggled.  He had to sit down after a couple minutes and they had to cut the trip short.  He's noticed this past week that he hasn't been near as dizzy or off-balance.  If the tumor were getting bigger, you'd think his symptoms would be getting worse, and instead, they're improving, but I'm no doctor.  We're definitely hoping and praying for a miracle on this next MRI.  If it still shows additional growth, we need to just have faith and hope that this radio-surgery will do the trick.
 
On the brighter side, Jared got a new Murano a few days ago!  And we love it even more than the old one!  And honestly, we're both doing okay.  We had a really rough first four days, a four days I wouldn't wish on anyone, but we've both been doing much better this last couple weeks.  Jared hasn't been sleeping much, but I think even that's gotten a little better.  Right now we're both anxious to get this procedure over with!